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Shwachman-Diamond America (SDA)
SDA supports research of Shwachman-Diamond Syndrome (SDS) with grants to researchers, and educates physicians and families about SDS.
Cystic Fibrosis Foundation
This organization offers information about the illness, public policy, clinical trials and local chapters.
National Institute of Diabetes and Digestive and Kidney Diseases
This group conducts and supports research on many serious diseases affecting public health.
Boomer Esiason Foundation
This former NFL quarterback has a personal interest in CF - his son has the disease - and has created this foundation to help find a cure.
This website brings together families who have children with special health needs.