Spina Bifida Factsheet (for Schools)
What Teachers Should Know
Spina bifida is a birth defect in which part of the spine does not form normally, leaving an opening in the back. As a result, the spinal cord and nerves may be damaged.
There are three types of spina bifida:
- Spina bifida occulta is the mildest form; "occulta" means "hidden," and the defect is covered by skin and there is no protrusion of the spinal cord or its coverings. Most children with this type don't have any problems, though some may develop symptoms as they get older.
- Meningocele involves the meninges, the membranes that cover and protect the brain and spinal cord. The meninges push through the opening in the back, forming a sac called a meningocele. Since the spinal cord is not involved, there is little or no nerve damage. Some children will have mild disability.
- Myelomeningocele is the most severe form of spina bifida. It happens when the meninges and the spinal cord push through the opening in the back. This causes nerve damage and is associated with more severe disabilities. Most people mean myelomeningocele when they say someone has spina bifida.
Problems that can occur with spina bifida include:
- hydrocephalus (fluid
buildup in and around the brain) that requires a shunt to drain the extra fluid. Teachers
should be aware of symptoms of shunt malfunction, which include headache, nausea or
vomiting, and a deterioration in physical or mental abilities.
- paralysis, depending on the location of the opening (the higher on the spine,
the more severe the paralysis)
- bowel and bladder
- poor eye–hand coordination, which can make things like handwriting difficult
- attention deficit hyperactivity disorder (ADHD) or other learning problems
Students with spina bifida may:
- use splints, casts,
leg braces, canes, crutches, walkers, or wheelchairs
- need extra time moving around classrooms, between classes, and throughout school
- need special seats and desks or tables, as well as assistive technology and extra
space for wheelchairs or other equipment
- have learning difficulties and problems with memory, attention, comprehension,
- need extra assistance and time to complete assignments
- miss class time due to medical appointments or surgeries
- need frequent bathroom breaks throughout the day
- be allergic to products that contain latex (natural rubber)
- have specific accommodations listed in an individualized education plan (IEP) or 504 education plan
What Teachers Can Do
Every child with spina bifida is different, and students' specific abilities can vary widely. Most students can do well in school, but some have difficulties. Understanding the extent of a student's condition will help you identify strengths and weaknesses in the classroom.
You may need to modify the classroom environment to meet your student's needs, as well as revise your teaching strategies and make other adjustments. The accommodations needed will depend on the student's impairment and the classroom environment. The student's specific needs should be listed in an IEP or 504 plan.
- A to Z: Myelomeningocele
- Parent-Teacher Conferences
- Spina Bifida
- Individualized Education Programs (IEPs)
- 504 Education Plans
- Balancing Academics and Serious Illness