Retinitis Pigmentosaenparentshttps://kidshealth.org/EN/images/headers/KH_generic_header_01_2.jpgRetinitis pigmentosa is a genetic condition that leads to vision loss over time.retinitis pigmentosa, retinitis, retina, pigmentosa, vision loss, blind, blindness, night vision, day vision, cataracts, can't see, loss of sight, sightless, 11/12/201911/15/201911/15/2019Jonathan H. Salvin, MD11/11/2019d8bc1c7e-c3fa-4e44-982a-698a0c7e8278https://kidshealth.org/ws/RadyChildrens/en/parents/retinitis-pigmentosa.html/<h3>What Is Retinitis Pigmentosa?</h3> <p>Retinitis pigmentosa (RP) is a <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/about-genetics.html/">genetic</a> condition that leads to vision loss over time. A person first loses their night vision, then their daytime <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/vision.html/">vision</a>.</p> <p>Often, people with RP have other eye problems that affect vision, such as cloudy lenses (cataracts) or swelling of the retina.</p> <h3>What Are the Signs &amp; Symptoms of Retinitis Pigmentosa?</h3> <p>In most types of retinitis pigmentosa (ret-in-EYE-tis pig-men-TOE-suh), the loss of night vision begins around age 10 and continues into adulthood. Sometimes it can begin earlier or later.</p> <p>Vision loss happens slowly. When it starts, a child may:</p> <ul> <li>see shimmers, blinking lights, or flashes</li> <li>be slow to adjust to darkness</li> <li>have trouble seeing things to the far left and right</li> </ul> <p>These problems usually show up when the child is doing normal activities. For example, a child may start to:</p> <ul> <li>have trouble seeing the ball or other players when playing sports</li> <li>find it hard to move around in low-light places, such as movie theaters</li> <li>bump into things</li> </ul> <h3>What Happens in Retinitis Pigmentosa?</h3> <p>The retina is a thin layer of tissue at the back of the <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/eyes.html/">eye</a>. It receives light and changes it into signals that travel to the <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/brain-nervous-system.html/">brain</a>, letting us see images. The retina is made of light-sensitive cells called rod cells and cone cells.</p> <p>In retinitis pigmentosa, over time the rod cells, which help us see at night, die off. Then, the cone cells, which help us see colors in daylight, die off.</p> <h3>Who Gets Retinitis Pigmentosa?</h3> <p>Sometimes RP runs in a family or happens in people with some types of health syndromes. Other people get it without a family history or a syndrome.</p> <h3>How Is Retinitis Pigmentosa Diagnosed?</h3> <p>If the condition runs in a family, <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/genetics.html/">genetic testing</a> can tell whether a child is likely to get RP before symptoms start.</p> <p>When a child shows symptoms of RP, an eye specialist will:</p> <ul> <li>do an eye exam</li> <li>check to see if another condition (such as an infection) is causing the symptoms</li> </ul> <p>The eye specialist may order tests, including:</p> <ul> <li>electroretinography (ERG) to check the eye's response to light</li> <li>optical coherence tomography (OCT) to examine the retina</li> <li>genetic tests</li> </ul> <h3>How Is Retinitis Pigmentosa Treated?</h3> <p>There's no treatment to cure retinitis pigmentosa or bring back lost vision. In some cases, diet changes and vitamins can slow the loss of vision a little. Doctors may recommend that kids with RP wear sunglasses to avoid bright sunlight when outdoors.</p> <p>If kids with RP have other eye problems that can make their vision worse (such as cataracts or swelling), those can be treated.</p> <h3>How Can Parents Help?</h3> <p>If your child has retinitis pigmentosa, talk with a genetic counselor to find out:</p> <ul> <li>which symptoms your child is likely to have</li> <li>how the RP gene runs in families</li> <li>if other children in your family are likely to have RP</li> <li>which treatments work best for your child</li> <li>if a <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/clinical-trials.html/">clinical trial</a> might be right for your child</li> </ul> <p>Follow the eye doctor's instructions for any diet changes, vitamins, or protection from bright light.</p> <p>You also can find more information and support online at:</p> <ul> <li><a href="https://www.fightingblindness.org/">The Foundation Fighting Blindness</a></li> </ul>Retinitis pigmentosaLa retinitis pigmentosa es una afección de base genética que conduce a la perdida de la visión a lo largo del tiempo.https://kidshealth.org/ws/RadyChildrens/es/parents/retinitis-pigmentosa-esp.html/601f78f7-0930-46e8-b904-3bc0da042d05
AmblyopiaAmblyopia interferes with the way the eye and the brain work together. The result is poor vision. Treatment may involve glasses, patches, eye drops, or surgery.https://kidshealth.org/ws/RadyChildrens/en/parents/amblyopia.html/486d90aa-3652-4c89-9e4d-110539ca3269
BlindnessKids who can't see, or can't see well, learn to live without using their eyes. To learn more about visual impairment and what causes it, read our article for kids.https://kidshealth.org/ws/RadyChildrens/en/kids/visual-impaired.html/a6517f0b-ab44-41ea-84c2-c8270e866793
Congenital CataractsA baby with congenital cataracts has clouding in one or both eyes. Doctors do surgery to treat them.https://kidshealth.org/ws/RadyChildrens/en/parents/congenital-cataracts.html/64bce3ca-93bc-4784-a11b-6c861d4d0723
Eye InjuriesYou can treat many minor eye irritations by flushing the eye, but more serious injuries require medical attention.https://kidshealth.org/ws/RadyChildrens/en/parents/eye-injury.html/478e5af4-6659-4a6f-ba0b-9870e14936cc
EyesAlthough your eyes are small, their structure is incredibly complex. Find out how they work in this body basics article.https://kidshealth.org/ws/RadyChildrens/en/teens/eyes.html/603f05a6-aecf-46e3-be27-6080fd9345ac
Glasses and Contact LensesSometimes the different parts of the eye don't work together the way they should. When this happens, people wear glasses or contact lenses. Find out more in this article for kids.https://kidshealth.org/ws/RadyChildrens/en/kids/glasses.html/13fcf85b-32ae-4ddd-a689-361a25c43203
GlaucomaGlaucoma damages the optic nerve. The condition gets worse over time and leads to a loss of vision if not treated. https://kidshealth.org/ws/RadyChildrens/en/parents/glaucoma.html/84bedf5e-34c4-4c59-8568-3ef1df1f2adb
Movie: EyesChloe and the Nurb take you on a tour of the eyes and how seeing happens. Watch this How the Body Works movie!https://kidshealth.org/ws/RadyChildrens/en/kids/eyes-movie.html/ad0936eb-f669-4a0e-b6e2-91a56642075b
Retinopathy of PrematurityRetinopathy of prematurity, which can happen in premature babies, causes abnormal blood vessel growth in the retina. Some children will need surgery to prevent vision loss or blindness.https://kidshealth.org/ws/RadyChildrens/en/parents/rop.html/e9f2aa26-e142-45b0-8ac8-3761ca8e8859
StrabismusStrabismus causes eyes to wander or cross. Treatment may include glasses, patches, eye drops, or surgery.https://kidshealth.org/ws/RadyChildrens/en/parents/strabismus.html/cbbbdb38-b30e-4efd-99fe-65598c1acdbf
Visual ImpairmentWhen one or more parts of the eye or brain that are needed to process images become diseased or damaged, severe or total loss of vision can occur. Read all about visual impairment.https://kidshealth.org/ws/RadyChildrens/en/teens/visual-impairment.html/24537535-ce73-4c5a-b289-632602997457
Visual Impairments Factsheet (for Schools)What teachers should know about visual impairments, and how to help students with vision problems succeed in school.https://kidshealth.org/ws/RadyChildrens/en/parents/vision-factsheet.html/b31ec62b-ac15-4b92-b7d9-514961504a64
Your EyesEver wonder how your eyes work? This article for kids takes you from the pupil to the retina and beyond.https://kidshealth.org/ws/RadyChildrens/en/kids/eyes.html/41e9a218-5f21-465b-9403-85aacb77c062
kh:age-allAgesOrAgeAgnostickh:clinicalDesignation-ophthalmologykh:genre-articlekh:primaryClinicalDesignation-ophthalmologyEye Conditions & Problemshttps://kidshealth.org/ws/RadyChildrens/en/parents/medical/eyes/48b60d4f-9a7c-4f2e-88c0-b97abca67cf0