Craniopharyngioma enparentshttps://kidshealth.org/EN/images/headers/KH_generic_header_02_2.jpgA craniopharyngioma is a rare type of benign brain tumor. Most people treated for a craniopharyngioma are cured.craniopharyngioma, brain tumor, benign brain tumor, benign tumor, craniopharyngiomas, pituitary gland, hormones, tumor, vision problems, optic, optic tract, optic nerve, peripheral vision, MRI, CT scan, spinal tap, endocrine, endocrinologist, low blood pressure, interventional radiology, endoscopic, minimally invasive, brain surgery, image-guided, radiation, proton, endocrinology07/09/201909/23/201909/23/2019William J. Parkes, IV, MD07/01/2019243572c1-c8fe-4edf-b9b4-966ecea99981https://kidshealth.org/ws/RadyChildrens/en/parents/craniopharyngioma.html/<h3>What Is a Craniopharyngioma?</h3> <p>A craniopharyngioma is a rare type of benign (not cancerous) <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/brn-tumors.html/">brain tumor</a>. These tumors usually form close to the pituitary gland and do not spread to other areas.</p> <p>Doctors usually can remove these tumors with surgery or treat them with high doses of <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/radiation.html/">radiation</a>. Most people treated for a craniopharyngioma are cured.</p> <h3>What Happens With a Craniopharyngioma?</h3> <p>A craniopharyngioma (kray-nee-oh-fair-in-jee-OH-muh) can grow and push on the things around it, including:</p> <ul> <li>the pituitary gland</li> <li>the optic tracts</li> <li>the third ventricle of the <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/brain-nervous-system.html/">brain</a></li> </ul> <p>Each of those parts help a child grow and thrive:</p> <ul class="kh_longline_list"> <li>The pituitary gland makes <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/hormones.html/">hormones</a> that help a child's body: <ul> <li>grow well</li> <li>change from a child into an adult</li> <li>maintain the right blood pressure</li> </ul> </li> <li>The optic tracts connect the optic nerves from the <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/eyes.html/">eyes</a> to the brain, so a child can <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/vision.html/">see</a>.</li> <li>The third ventricle of the brain is a fluid-filled space that connects with other fluid-filled spaces in and around the brain. The fluid in these spaces: <ul> <li>protects the brain from jolts and hits to the head</li> <li>carries nutrients and gets rid of waste</li> </ul> </li> </ul> <p>When a craniopharyngioma pushes on these parts, they don't work well, so a child starts to have symptoms.</p> <p><img class="center_this" title="Diagram of the brain showing the pituitary gland, a small endocrine organ at the base of the brain, as explained in the article" src="https://kidshealth.org/EN/images/illustrations/pituitary_enIL.jpg" alt="Diagram of the brain showing the pituitary gland, a small endocrine organ at the base of the brain, as explained in the article" /></p> <h3>What Are the Signs &amp; Symptoms of a Craniopharyngioma?</h3> <p>When a craniopharyngioma grows and presses on the areas around it, a child might:</p> <ul> <li>not go through the usual changes of <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/understanding-puberty.html/">puberty</a></li> <li>grow slowly or not grow</li> <li>not start having <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/talk-about-menstruation.html/">periods</a> (menstruation)</li> <li>have low blood pressure</li> <li>be more tired than usual or sleep a lot</li> <li>act differently (have a personality change)</li> </ul> <p>The child also may:</p> <ul> <li>have <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/headache.html/">headaches</a></li> <li>have hearing problems</li> <li>have trouble seeing things to the far left and far right</li> <li>have poor balance or trouble walking</li> <li>have nausea and <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/vomit.html/">vomiting</a></li> <li>need to drink more than usual</li> <li>need to pee more often than usual</li> </ul> <h3>What Causes Craniopharyngioma?</h3> <p>Experts think that craniopharyngiomas grow from leftover pieces of tissue that didn't disappear as expected in early <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/pregnancy-calendar-intro.html/">pregnancy</a> when the baby's head, face, and brain are forming.</p> <h3>Who Gets Craniopharyngioma?</h3> <p>Most craniopharyngiomas happen in kids 5 to 14 years old. But they can affect people of any age.</p> <h3>How Are Craniopharyngiomas Diagnosed?</h3> <p>Usually, parents notice one or more of the symptoms of a craniopharyngioma and take their child to a doctor. Other things can cause similar symptoms, so the doctor will:</p> <ul> <li>ask questions about the symptoms and other medical problems (medical history)</li> <li>do an exam</li> <li>order blood tests to measure mineral and hormone levels</li> <li>do imaging tests, including <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/ct-head.html/">CAT scan</a> or <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/mri-brain.html/">MRI</a></li> </ul> <p>Other tests done can include:</p> <ul> <li>a <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/emmi-lumbar-puncture.html/">lumbar puncture (spinal tap)</a></li> <li>a <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/biopsy.html/">biopsy</a> to test a sample of the tissue. This can involve: <ul> <li>surgery through an opening in the skull</li> <li><a href="https://kidshealth.org/ws/RadyChildrens/en/parents/endoscopic.html/">minimally invasive</a> techniques through the nose or through a needle inserted through a small hole in the skull</li> </ul> </li> </ul> <h3>How Is Craniopharyngioma Treated?</h3> <p>A team of specialists works together to treat a craniopharyngioma. They include experts in:</p> <ul> <li>brain and spinal cord disorders (neurology)</li> <li>surgery and brain surgery (pediatric surgeons and neurosurgeons)</li> <li>hormones and mineral balance (endocrinology)</li> <li>diagnosing diseases by examining body tissues, fluids, and organs (pathology)</li> <li>imaging (radiology)</li> <li>image-guided minimally-invasive procedures (<a href="https://kidshealth.org/ws/RadyChildrens/en/parents/intvnl-radiology.html/">interventional radiology</a>)</li> <li>radiation treatment, including <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/proton-therapy.html/">proton</a> treatment (radiation oncology)</li> <li>behavioral health specialists (psychology and psychiatry)</li> <li>nutrition (registered dietitian)</li> </ul> <p>Surgeons usually remove the tumor as the first step in treatment. Depending on the tumor's size and location, it may be removed through a temporary hole cut in the skull or through the nose.</p> <p>The surgeon will put a drain tube (shunt) in at the time of surgery if the child has water on the brain (<a href="https://kidshealth.org/ws/RadyChildrens/en/parents/hydrocephalus.html/">hydrocephalus</a>). If the surgeon can't completely remove the tumor, the child may also need radiation therapy.</p> <p>Doctors continue looking for new ways to treat craniopharyngiomas. Some patients might be candidates for a <a href="https://kidshealth.org/ws/RadyChildrens/en/parents/clinical-trials.html/">clinical trial</a>. If your child has a craniopharyngioma, talk to the doctor about whether this might be a good treatment option.</p> <h3>What Else Should I Know?</h3> <p>After surgery to remove a craniopharyngioma, the pituitary gland may have some permanent injury. A child may have to take medicines to replace some hormones for life.</p> <p>Radiation therapy can make the pituitary gland stop working several years after treatment. So children who had this treatment should see a hormone specialist — or endocrinologist — every year.</p> <p>After treatment, doctors will do follow-up MRIs for several years to check if the tumor has come back.</p>CraneofaringiomaLos craneofaringiomas son un tipo muy poco frecuente de tumor cerebral benigno (no canceroso). Estos tumores suelen formarse cerca de la hipófisis y no se extienden a otras partes del cuerpo. https://kidshealth.org/ws/RadyChildrens/es/parents/craniopharyngioma-esp.html/5a146135-2fd2-4dbb-bcea-8cf92c153aca
Brain TumorsBrain tumors are the second most common group of childhood cancers. Treatment requires a very specialized plan involving a team of medical specialists.https://kidshealth.org/ws/RadyChildrens/en/parents/brn-tumors.html/ff2bd11c-a3d8-4bb3-bb58-edd97dd13a31
Brain and Nervous SystemThe brain controls everything we do, and is often likened to the central computer within a vast, complicated communication network, working at lightning speed.https://kidshealth.org/ws/RadyChildrens/en/parents/brain-nervous-system.html/1e2a5004-5865-4069-97fd-5488c31075b9
CAT Scan: HeadA head CAT scan is a painless test that uses a special X-ray machine to take pictures of a patient's brain, skull, and sinuses, as well as blood vessels in the head. It might be done to check for any number of conditions.https://kidshealth.org/ws/RadyChildrens/en/parents/ct-head.html/60a95789-3c39-4223-870e-3ebf4a3efdb4
Magnetic Resonance Imaging (MRI): BrainA brain MRI, a safe and painless test that produces detailed images of the brain and the brain stem, can help detect cysts, tumors, bleeding, and other problems.https://kidshealth.org/ws/RadyChildrens/en/parents/mri-brain.html/40aeac7a-dcc7-4b79-8c2b-fd075222ac56
Minimally Invasive SurgeryMinimally invasive surgery is a type of procedure done without the use of a large incision (cut).https://kidshealth.org/ws/RadyChildrens/en/parents/endoscopic.html/f82196ab-9f52-4d89-872c-dbfdcefed5d5
Radiation TherapyRadiation therapy, also called radiotherapy, irradiation, or X-ray therapy, is one of the most common forms of cancer treatment.https://kidshealth.org/ws/RadyChildrens/en/parents/radiation.html/b9df7e63-811c-454a-b467-44a28efb1250
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