Spina Bifida Factsheet (for Schools)enparentshttps://kidshealth.org/EN/images/headers/P-SNF-SpinaBifida-enHD.jpgWhat teachers should know about spina bifida, and how to help students with the birth defect do their best in school.spina bifida, spina bifida occulta, meningocele, myelomeningocele02/24/201511/25/201911/25/2019Mary L. Gavin, MD02/14/2015772cd285-b2dd-4a4a-8cfd-26b69f206900https://kidshealth.org/ws/DaytonChildrens/en/parents/spina-bifida-factsheet.html/<h3>What Teachers Should Know</h3> <p>Spina bifida is a birth defect in which part of the spine does not form normally, leaving an opening in the back. As a result, the spinal cord and nerves may be damaged.</p> <p>There are three types of spina bifida:</p> <ol class="kh_longline_list"> <li><strong>Spina bifida occulta</strong> is the mildest form; "occulta" means "hidden," and the defect is covered by skin and there is no protrusion of the spinal cord or its coverings. Most children with this type don't have any problems, though some may develop symptoms as they get older.</li> <li><strong>Meningocele</strong> involves the meninges, the membranes that cover and protect the brain and spinal cord. The meninges push through the opening in the back, forming a sac called a meningocele. Since the spinal cord is not involved, there is little or no nerve damage. Some children will have mild disability.</li> <li><strong>Myelomeningocele</strong> is the most severe form of spina bifida. It happens when the meninges and the spinal cord push through the opening in the back. This causes nerve damage and is associated with more severe disabilities. Most people mean myelomeningocele when they say someone has spina bifida.</li> </ol> <p>Problems that can occur with spina bifida include:</p> <ul> <li><a href="https://kidshealth.org/ws/DaytonChildrens/en/parents/hydrocephalus.html/">hydrocephalus</a> (fluid buildup in and around the brain) that requires a shunt to drain the extra fluid. Teachers should be aware of symptoms of shunt malfunction, which include headache, nausea or vomiting, and a deterioration in physical or mental abilities.<br /> </li> <li>paralysis, depending on the location of the opening (the higher on the spine, the more severe the paralysis)<br /> </li> <li><a href="https://kidshealth.org/ws/DaytonChildrens/en/parents/incontinence-factsheet.html/">bowel and bladder control problems</a><br /> </li> <li>poor eye&ndash;hand coordination, which can make things like handwriting difficult<br /> </li> <li><a href="https://kidshealth.org/ws/DaytonChildrens/en/parents/adhd-factsheet.html/">attention deficit hyperactivity disorder (ADHD)</a> or other learning problems</li> </ul> <p>Students with spina bifida may:</p> <ul> <li>use <a href="https://kidshealth.org/ws/DaytonChildrens/en/parents/mobility-factsheet.html/">splints, casts, leg braces, canes, crutches, walkers, or wheelchairs</a><br /> </li> <li>need extra time moving around classrooms, between classes, and throughout school<br /> </li> <li>need special seats and desks or tables, as well as assistive technology and extra space for wheelchairs or other equipment<br /> </li> <li>have learning difficulties and problems with memory, attention, comprehension, and organization<br /> </li> <li>need extra assistance and time to complete assignments<br /> </li> <li>miss class time due to medical appointments or surgeries<br /> </li> <li>need frequent bathroom breaks throughout the day<br /> </li> <li>be allergic to products that contain latex (natural rubber)<br /> </li> <li>have specific accommodations listed in an <a href="https://kidshealth.org/ws/DaytonChildrens/en/parents/iep-teachers.html/">individualized education plan (IEP)</a> or <a href="https://kidshealth.org/ws/DaytonChildrens/en/parents/504-teachers.html/">504 education plan</a></li> </ul> <h3>What Teachers Can Do</h3> <p>Every child with spina bifida is different, and students' specific abilities can vary widely. Most students can do well in school, but some have difficulties. Understanding the extent of a student's condition will help you identify strengths and weaknesses in the classroom.</p> <p>You may need to modify the classroom environment to meet your student's needs, as well as revise your teaching strategies and make other adjustments. The accommodations needed will depend on the student's impairment and the classroom environment. The student's specific needs should be listed in an IEP or 504 plan.</p>
504 Education PlansIf your child has special needs in the classroom, he or she may be eligible for a government-supported learning plan.https://kidshealth.org/ws/DaytonChildrens/en/parents/504-plans.html/0af3e773-e353-4673-a384-b0e9b4a5c1f2
A to Z: MyelomeningoceleLearn about birth defects and conditions that affect the spinal cord and spinal column.https://kidshealth.org/ws/DaytonChildrens/en/parents/az-myelomeningocele.html/ce6bd863-7147-4abb-9c6b-95ed0dcbe8e7
Balancing Academics and Serious IllnessWhen your child has a serious or chronic illness, it's hard to think beyond the next treatment. But with planning and communication, you can help your child balance treatment and academics.https://kidshealth.org/ws/DaytonChildrens/en/parents/academics-illness.html/1ea6f392-d068-4cd7-bac5-f257148e4e67
Individualized Education Programs (IEPs)Some kids may be eligible for individualized education programs in public schools, free of charge. Understanding how to access these services can help you be an effective advocate for your child.https://kidshealth.org/ws/DaytonChildrens/en/parents/iep.html/ef341e68-df36-41ee-a535-d8b3906379f7
Parent-Teacher ConferencesAttending parent–teacher conferences is a great way to help your kids succeed at school. Here's what to do before, during, and after the meeting.https://kidshealth.org/ws/DaytonChildrens/en/parents/parent-teacher-conferences.html/e45216db-81e7-4bc5-b124-92e87e3e667d
Spina BifidaSpina bifida is a birth defect that involves the incomplete development of the spinal cord or its coverings. It's usually detected before a baby is born and treated right away.https://kidshealth.org/ws/DaytonChildrens/en/parents/spina-bifida.html/a13499de-e5ce-40a1-a8bd-12bd447f75cf