Recovery after limb lengthening surgery with an internal
lengthening device goes best when you know what to expect. The surgery is a big commitment,
and it takes most kids a few months to get back to full activity. With your help,
your child can get the best results.
Why Is Limb Lengthening Surgery With an Internal Lengthening Device Done?
The surgery is done when someone has a leg
length discrepancy. This means that one leg is shorter than the other.
What Is an Internal Lengthening Device?
An internal lengthening device is an expandable rod that's placed inside a bone.
There is a magnetic gear system inside the rod. A handheld remote controller goes
on top of the skin and uses another magnet to slowly lengthen the internal device.
Many surgeons use an internal lengthening device called the PRECICE®.
What Happens During Limb Lengthening Surgery?
The surgery to place the device is done by an
surgeon. It's done in several steps:
Your child will get general anesthesia
to sleep through the surgery without feeling any pain.
An incision (cut) is made through the skin and the lengthening device is inserted
into the bone.
Another incision is made so the bone can be cut. This is where the new bone growth
will happen.
The lengthening device is pushed through the cut bone.
Screws are put it in to keep the lengthening device in place.
Using the remote controller, the surgeon makes sure that the magnet motor is working
properly.
The incisions are closed with stitches.
How Should We Prepare for Limb Lengthening Surgery?
Making some plans before the surgery will help you be prepared when your child
comes home from the hospital. Some things to consider:
Plan for your child to be in the hospital for about 1–2 days after surgery. While
your child is in the hospital, you'll learn about caring for him or her at home. You
will also learn how to use the remote control for the limb lengthening device.
For the first few weeks, your child will need help getting dressed, going to the
bathroom, and bathing.
Your child will need help doing stretching and strengthening exercises. These
are a very important part of healing. You, or another trusted adult, will need to
be there to help your child.
Make arrangements for your child to be home from school for about 6 weeks. Talk
to your child's school so that work can continue while your child is at home. The
school may be able to provide a home tutor.
Plan who will take your child to the follow-up appointments with the surgery team
and to physical therapy.
Not being able to put weight on one leg for months can be stressful for your child
and for you. Using crutches or a walker gets tiring. If you can, arrange for another
trusted adult to stay with your child so you can get a little time for yourself. And
arrange for your child to visit with friends or go for safe outings with a trusted
adult, maybe using a wheelchair.
What Happens After Limb Lengthening Surgery?
Your child needs your help after surgery. He or she should not put any weight on
the newly lengthened limb for several months. Following the orthopedic care team's
instructions will help your child get the best result.
For about 6–8 weeks after surgery, you will need to:
Help your child use crutches, walker, or wheelchair to get around as instructed
by your care team. Your child should not put any weight on the leg with the
internal lengthening device during this time.
Use the remote controller as directed by the surgeon, usually about three times
a day. It's programmed specifically for your child.
Take your child to physical
therapy and possibly aquatic therapy (physical therapy in a pool).
Help your child with stretching and strengthening exercises.
Give your child medicine for pain and muscle spasms. Your child will have pain
from the surgery and may have pain during the exercises and stretches. The pain medicine
will include opioid medicines. Opioids are very good at treating pain, but they can
be dangerous if not given as directed. They also can lead to addiction. It's important
to safely give
opioid pain medicine.
Help your child get the nutrition needed to grow new bone and recover from surgery.
He or she should eat a balanced diet that includes 3–4 servings of dairy and plenty
of fruits and vegetables every day. Your care team also may recommend vitamin supplements.
Go for follow-up appointments with the surgery team about every week. X-rays will
be done at each visit to check your child's progress.
The time it takes to reach the desired limb length varies, it's usually within
a few months after surgery. Once lengthening is complete, you will stop using the
remote controller. The lengthening device stays in place to support the growing bone.
Be sure to:
Follow the orthopedic care team's instructions about when it is OK for your child
to put weight on the newly lengthened limb.
Continue to take your child to physical therapy and do home stretching and strengthening
exercises.
Continue to take your child to follow-up visits with the surgery team about every
4 weeks. X-rays will be done at every visit to see how the bone is healing.
Gradually, as the new bone gets stronger, your child will be able to do more and
more. Most kids get back to their usual activities about 6–9 months after the rod
was placed.
The implant is removed 1–2 years after surgery. Your child can go home from the
hospital the same day that it's taken out.
Looking Ahead
To get the best result, your child will need your help in the months after surgery.
Keep a positive attitude that lets your child know that you can do it together. After
the process is complete, most families say that the surgery was well worth the effort.
If you or your child are feeling very stressed or overwhelmed, be sure to talk
to a psychologist or the social worker on your care team.
