There's a lot of disagreement among doctors when it comes to fibromyalgia. Theories
differ as to what causes it and how best to treat it. There's even disagreement about
what to call it — some call it a syndrome, others a disorder, still others a
Whatever you label it, and whatever its origins, fibromyalgia presents a very real
challenge to those coping with its symptoms each day.
Fibromyalgia is a common chronic pain condition — it affects millions
of people in the United States. It's far more common in females than males and can
start when kids are in their teen years or even younger, although it's most common
in women between the ages of 20 and 50.
Fibromyalgia (fy-bro-my-AL-ja) is a long-term, or chronic, syndrome that causes
widespread pain in the muscles, joints, and other soft tissues of the body. The term
"fibromyalgia" comes from the Latin word "fibro" for fibrous tissue, and the Greek
"myo" for muscle, and "algos" meaning pain. In kids, it is sometimes referred to as
juvenile primary fibromyalgia syndrome.
The pain of fibromyalgia is often accompanied by isolated tender or sore areas,
fatigue, poor sleep, headaches,
and other symptoms. Fibromyalgia is often considered a syndrome rather than a disease
because it's a collection of symptoms that seem to be related but, unlike a disease,
there's no cause that can be identified.
Although fibromyalgia is a chronic condition, its symptoms typically come and go.
They can be mild at times, then so severe at others that they interfere with normal
activities. Many kids with fibromyalgia can attend school regularly, but their abilities
vary depending upon the severity of their symptoms.
Treatment for fibromyalgia focuses on managing the pain and other symptoms. This
often involves a combination of medicines and lifestyle changes, such as exercise,
relaxation, and stress-management techniques. There is no cure for fibromyalgia, but
treatment has been shown to improve the quality of life for those who have it.
Most kids with fibromyalgia complain of widespread muscle pain, usually a dull
or burning kind, but sometimes more of a shooting or throbbing pain. Widespread means
the pain happens on both sides of the body, above and below the waist; it can range
from mild to severe.
Usually, someone with fibromyalgia also has a number of tender spots — places
where he or she feels pain if the spot is pressed. Common tender spots include the
back of the head, between the shoulder blades, shoulders, chest, neck, hips, knees,
Fatigue (tiredness) is another common complaint of kids with fibromyalgia.
Because of this, fibromyalgia can mimic the symptoms of a similar condition called
chronic fatigue syndrome. Sometimes,
a person can have both conditions, but they are separate syndromes.
Fibromyalgia also usually causes sleeping problems that make getting a good night's
sleep difficult. Some kids may have other sleep disorders like restless legs syndrome
and sleep apnea. Poor sleep
can also lead to waking up with body aches and stiffness that may improve during the
day, then get worse at night.
People with fibromyalgia often notice a variety of external factors that can make
their symptoms worse, from emotional stress to cold, damp weather.
Doctors aren't really sure what causes fibromyalgia, but most agree that the brains
of people who have it sense pain differently. They might feel pain in response to
things (like stress) that aren't normally painful.
Some cases of fibromyalgia seem to be triggered by an event — like an infection
or illness, physical injury, or emotional upset. Genetic factors also might play a
role. Fibromyalgia tends to run in families, so it's possible that having a genetic
mutation may increase someone's risk of developing the condition.
If your child seems to be suffering from one or more of fibromyalgia's major symptoms
— such as chronic muscle pain, fatigue, or disrupted sleep — contact a
doctor. While there's no specific test to diagnose fibromyalgia, a doctor can run
tests to rule out other possible causes, such as thyroid disorders, infectious diseases,
or rheumatic diseases (like juvenile
Since fibromyalgia can't be confirmed by any laboratory tests and has few, if any,
visible signs, it can be difficult for doctors to diagnose the condition. This can
be frustrating for someone who has it. Some estimates claim that it takes an average
of 5 years for someone with fibromyalgia to get an accurate diagnosis, and some doctors
are not as familiar with the condition as others.
Doctors diagnose fibromyalgia in someone based on medical history, the person's description
of symptoms, and a physical exam, including a check of 18 usual tender spots. Most
kids with fibromyalgia will have pain when pressure is applied to at least five of
the tender spots, and will have widespread musculoskeletal aches lasting for at least
3 months, with no other medical problem causing the pain.
There's no cure for fibromyalgia, but treatment can help manage symptoms, ease
pain, and improve a child's overall health and quality of life. Treatments for fibromyalgia
include both lifestyle changes, behavioral therapy, and medicines.
Before giving medicines, doctors usually will try other treatments, such as:
Regular exercise. This may increase pain at first, but exercise
can help ease symptoms when done gradually and regularly. Some kids benefit from working
with a physical therapist. Others can show improvement from stretching and relaxation
Stress-relief methods. This can include yoga, t'ai chi, and other
disciplines, as well as light massage, breathing exercises, and acupuncture.
Proper sleep. Getting enough sleep is one of the most effective
ways to treat fibromyalgia, so children with fibromyalgia should be encouraged to
avoid caffeine and sugary beverages and snacks right before bedtime. They also should
go to bed and get up at the same time each day and limit napping during the daytime.
Healthy lifestyle choices. This includes eating a healthy diet
and finding activities that help distract from the symptoms of fibromyalgia.
Some kids also find that changing the way they think about their condition helps
improve their symptoms. Cognitive-behavioral therapy(CBT),
a therapy used by mental health professionals, can help kids learn to filter out negative
thoughts, recognize what makes symptoms worse, and set limits to keep symptoms in
If these steps aren't enough to manage fibromyalgia symptoms, the doctor may prescribe
medications. Some of the more common ones prescribed to treat fibromyalgia are:
Pain relievers. Over-the-counter medicines, such as acetaminophen,
ibuprofen, and naproxen
sodium, can help ease the pain and stiffness caused by fibromyalgia. Doctors also
may use prescription pain relievers, such as tramadol.
Antidepressants. A number of prescription antidepressants are
used to ease pain and fatigue and help promote better sleep.
Anti-seizure medications. A handful of drugs used to treat epilepsy are also useful in
treating fibromyalgia symptoms.
In addition to helping your child manage the symptoms of fibromyalgia, it's also
important to provide the necessary emotional support. Talking about the condition
and coming up with coping strategies together can help.
Many young people also find that support groups, as well as counseling from a trained
psychologist, can help them learn to manage their symptoms, feel better, and have
a more positive outlook on life./p>