As a parent, you want to give equal attention to all of your children. But when
parenting a child with special needs, that can be hard. Your child with a disability
needs you. But so do his or her siblings. It may feel like there's never enough of
your attention to go around — and your other kids might begin to feel left out.
It can help to understand what your typically developing child or teen might be
thinking and feeling. Kids love their siblings. They want to understand why there
are some things that a sibling with a disability cannot do, and how they can help.
By answering questions in an age-appropriate way and being open and honest, you
can help ease worries, clear up any confusion, and maybe even give your other kids
a chance to help out. Kids who feel understood, loved, and secure about their place
in the family can thrive — and the bond between siblings can grow.
Here's what might come up with kids at different ages and stages of development.
Preschoolers (Ages 3 to 5)
By nature, preschoolers feel that everything is about them and what they want —
from the game they want to play to the toy they ask for at the store. So helping them
understand why a sibling might need more of your time or attention can be hard.
It can help to set aside one-on-one time with your child. This can be a challenge,
but even a few minutes spent playing ball or allowing your little one to "help" you
in the kitchen at mealtime can provide the mommy or daddy time that your child needs.
When kids ask about their sibling's abilities, explain the condition using simple
language in a way they can understand. Use real words, like "cerebral palsy" instead
of "boo boo." This prevents confusion in kids who get their own cuts and scrapes —
you don't want them to be overly concerned about a bump on the head.
Say something like, "Your brother has trouble walking because he has cerebral palsy."
If your child asks, "What is cerebral palsy?," state in simple terms that it's a condition
that makes it harder for a child to do the same things other kids do.
Kids this age are also "magical thinkers" — so, the drink poured at the tea
party is very hot and the monsters under the bed are very real. When kids have a sibling
with special needs, this type of thinking can mean that they worry that the disability
is an illness, like the common cold. Reassure your child that he or she cannot "catch"
a condition like cerebral palsy, and that nothing either child did created the condition
— it is no one's "fault."
Big Kids (Ages 6 to 12)
By elementary school, kids start to better understand the "why" of a diagnosis.
Expect that you will get more complicated questions, and don't be afraid to answer
For example, for questions about a sibling with limited mobility, your explanation
might expand to "His legs don't work because he was born with a health problem." The
next question might be, "Will he ever walk?," to which you need to answer honestly:
"I don't know if he will, but we're going to try to help him do that. That's why he
Your child might be sad or worried about his or her sibling's health. But playing
together and enjoying each other's company can help. Encourage your typically developing
child to read books to his or her sibling, build block towers together, and do craft
activities with fingerpaint or clay.
This is also the age when kids start having to explain their sibling's condition
to their friends. Some friends might ask rude questions or even participate in bullying
behavior such as name-calling, which can leave your child feeling embarrassed, angry,
You can help your child weather these encounters by rehearsing some conversations.
If someone asks, "What's wrong with your sister?," for example, your child can simply
say: "She has cerebral palsy." Or if a classmate uses an unkind term to describe the
sibling with special needs, let your other kids know that as hard as it is, they must
not act out in anger. Instead, help them explain the situation: "It's harder for my
sister to learn new things than it is for you or me, but that doesn't make it OK to
say mean things about her."
Sibling rivalry also builds at this age, so don't be surprised if kids act jealous
of their brother or sister with special needs. After all, they see their sibling getting
extra attention, or being allowed to stay up later or excused from doing chores.
Comparisons are normal, but explain that while it seems unfair, this is simply
the way it has to be. Just as a child might feel that the sibling is getting extra
attention, there are many opportunities that the sibling with special needs cannot
have. Fair does not always mean equal.
Teens (Ages 13 and Up)
During the teen years, siblings often feel increased pressure to care for their
siblings with special needs. You might rely on your teen to babysit or help more with
chores around the house. Teens might feel pressure to take on more responsibility
than they should at this age.
As a parent, make sure you are not asking too much of your teen. Make certain responsibilities,
such as babysitting, a choice. This will help teens feel that they have control over
how much they help out. For example: "It would be great if you could watch your sister,
but if you want to go out with your friends, that's OK."
Also, be sure that you don't expect too much when it comes to chores, schoolwork,
or extracurricular activities. Typically developing children sometimes feel extra
pressure to be perfect so that their parents don't have to worry about them.
Teens are struggling with their independence from parents. And a teen who has a
sibling with special needs also may struggle with the idea of life apart from that
sibling. Let your teen know that wanting more independence and experiencing more of
the world is normal, healthy, and encouraged, within safe limits.
As teens near adulthood, they might start to worry about the future, and wonder
who is going to help care for the sibling once they've moved out — or if something
happens to you. Reassure your teen that whatever the future holds, help with caring
for his or her sibling will depend on how much your teen is comfortable taking on.
Then, have a plan ready for when changes come that will benefit all members of the
Handling Strong Emotions
Just as parenting a child with special needs can be joyful and
frustrating, kids and teens who have a brother or sister with special needs will have
ups and downs.
Some siblings roll with the punches and don't let much bother them, while others
are more sensitive and take things to heart. These kids need healthy ways to work
through their emotions. Writing in a journal, being physically active, or participating
in creative arts like dance or music are good ways to handle strong emotions.
But if you notice changes in your child's sleep routine, appetite, mood, or behavior,
it could be a sign of anxiety, depression,
or another problem. If this happens, seek help from a mental health professional for