If your child has a serious illness, the caretaking that falls to you is undoubtedly
intense. But of course you do it willingly. After all, you'd do anything for your
child, including switching places in a minute if only that were possible.
Instead you give all that you can, in every other imaginable way. It's harder than
anything you've ever done, and honestly, there are moments when the sheer magnitude
of what you're up against is so overwhelming that you just want to run and hide.
Ask any parent who's done this before and you'll find out something very important:
You're not alone.
The Caregiver's Dilemma
When you're the caregiver of a child who is seriously ill, it can feel as if the
whole world is on your shoulders. Your sick child needs you. You may have other children
who need you. Your spouse needs you. Your job — however pointless work might
seem right now — needs you.
Yet there's only so much you can give before you will feel mentally, emotionally,
and physically drained. That's why it's a necessity — not a luxury — to
spend some time taking care of yourself so that you can recharge and feel empowered
to continue to support and care for your child.
Tips for Caregivers
Many of these tips might seem easier said than done at first, and a few may seem
downright frivolous. But to make it through the long haul, consider the wisdom of that
air-safety rule about putting your own oxygen mask on first before helping
others. Here are some ways to do that:
Take breaks. It's essential to regularly schedule a few times
each week — even for just an hour or two — when you can get away while
a family member, friend, or a health aide stays with your child. Once away, that time
is yours, so don't feel guilty about how you spend it. Nap, read, have coffee with
a friend, go shopping, whatever allows you to relax. While you're out, your child
will probably enjoy having someone else to talk to and you'll feel refreshed when
you get back.
Eat right. It's no surprise that living on coffee and picking
at hospital leftovers can leave you feeling tired and run down. If you know you're
going to be out, carry nutritious snacks with you, like fruit, granola bars, sandwiches,
or nuts. And if friends offer to bring homemade meals to your home to help out, take
them up on it.
Exercise. Whether through a brisk walk, a bike ride, or yoga,
most people find that exercise helps clear the mind, boost energy levels, and improve
sleep. Even 20 minutes can do the trick, so save a bit of time every day to get moving.