Here's a pop quiz: What kinds of food can kids with cystic fibrosis
(say: SIS-tik fy-BRO-sus) eat?
mac 'n cheese
all of the above
If you picked #5, you're right! Kids with cystic fibrosis (CF) can eat all of these
foods — and they usually need to eat more of them than most kids do.
We'll explain why in a minute, but first let's look at what CF is.
CF is a disease that affects epithelial (say: eh-puh-THEE-lee-ul)
cells, which are found in lots of places in the body, like the lungs and the digestive
system. Problems in these cells can upset the balance of salt and water in the
body. This causes the body to make abnormally thick mucus (like the kind in your nose
when you have a really bad cold), which can clog up the lungs and make if hard for
kids with CF to breathe.
This problem can also affect the digestive system and block the body from getting
the good stuff from food it needs, like fats and vitamins.
This means kids with CF may be short for their age and not weigh enough. Kids with
CF may get sick a lot more often than other kids because of these lung and digestive
CF is a genetic (say: geh-NET-ik)
disease. This means that you can't catch CF. Kids with CF are born with it because
a gene for the disease is passed on to them by both of their parents, who each carry
a CF gene in their bodies, but don't have CF themselves.
The good news is that when kids with CF eat well and take their medicines,
they can keep themselves healthier.
All kids need to eat well to grow up healthy and strong. But kids with CF need
to eat more than most other kids, so they and their parents often work with a CF dietitian (say: dy-uh-TIH-shen) to
plan what they should eat. A dietitian is someone who knows all about food and nutrition.
Each kid is different, but most kids with CF will eat three meals a day plus snacks
to make sure that they get all of the calories they need. This isn't all that different
from other kids, but the meals and snacks that a kid with CF eats should have more
calories and fat in them. It's also very important that a kid with CF not miss meals.
So what do kids with CF use these extra calories for? Like everyone else, kids
with CF need calories to grow, to gain weight, and to have energy to play. But kids
with CF need extra calories because their bodies have a hard time absorbing fat and
nutrients (say: NOO-tree-entz) in food. Instead of absorbing the
fat and nutrients from food, some of these important things can go right out of the
person's body in their bowel movements. Kids with CF also may need more calories to
help their bodies fight the lung infections they tend to get.
Let's take a closer look at some important nutrients and where to find them.
It's All in the Nutrients
Nutrients are the things in food that help keep our bodies running well. Kids with
CF have some nutrients that they need to make sure they eat each day. These include:
Iron. Iron is essential for carrying oxygen to all the body's cells.
You can find iron in some cereals, meats, dried fruits, and dark green vegetables.
Zinc. Zinc is important for growth, healing, and staying healthy. You'll
find zinc in meats, liver, eggs, and seafood.
Calcium. Calcium helps build strong bones. Milk, yogurt, cheese, and
calcium-fortified juices are rich in calcium.
Salt. Kids with CF lose a lot of salt in their sweat, especially during
hot weather and when they exercise. A good way to replace this salt is by adding salt
to food and eating salty snacks. During hot weather and when kids play sports, they
may need sports drinks during and after practice or gym class.
Yummy, Healthy, and Full of Calories
All kids need to eat a balanced diet of regular meals and snacks that include plenty
of fruits, veggies, whole grains, dairy products, and protein. But kids with CF need
to work with their CF dietitian and their parents to make sure they are getting all
the calories and nutrients they need.
This might sound hard, but here are some simple tips. Click on the links for some
great recipes that a grownup can help you make:
Top hot chocolate, pudding, and other desserts with whipped cream.
Keep trail mix, nuts, packets of cheese, or peanut butter
crackers handy for snacks.
More Than Just Food
For some kids with CF, eating lots of great meals isn't enough — they may
need a little extra help.
Some kids with CF need to take special vitamins, especially for vitamins A,
D, E, and K. These vitamins help kids stay healthy. But to do their work, they have
to be absorbed by the body and dissolved in fat. Because most kids with CF have trouble
absorbing fat into their bodies, they often have low levels of these vitamins and
need to take larger amounts of them as pills.
Most kids with CF need to take pills that contain enzymes (say:
EN-zimes). Someone takes enzymes because his or her pancreas (say:
PAN-kree-us) doesn't work properly. The pancreas is a gland that's connected to the
small intestine (say: in-TES-tun). It makes juices containing enzymes that help the
small intestine digest fat, starch, and protein. If the pancreas can't make these
juices normally, the problem is called pancreatic insufficiency (say:
Most kids with CF will have pancreatic insufficiency by the time they are 8 or
9 years old. It's important for these kids to take enzymes before they eat most foods.
The enzymes will help these kids digest their food better.
Many people want to eat less and lose weight. Kids with CF have the opposite problem:
They have to eat when they aren't hungry, don't feel like eating, or none of their
friends are eating. If you are a kid with CF, remember that eating well and taking
your enzymes and vitamins will help you have the energy to do all the great things
you want to do with your friends, from playing soccer to going to sleepovers.
And if you have a friend with CF, now you know why he or she digs in every day
at lunch. Maybe you can dig into a healthy lunch, too — and help other kids
understand why eating right helps someone with CF stay healthy and strong.