Neurocutaneous Syndromes

Neurocutaneous Syndromes


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OrganizationNational Neurofibromatosis Foundation (NNFF)
NNFF is a nonprofit foundation dedicated to improving the health and well-being of individuals and families affected by neurofibromatosis.

OrganizationTuberous Sclerosis Alliance
The Tuberous Sclerosis Alliance is dedicated to finding a cure for the many aspects of tuberous sclerosis complex (TSC).

OrganizationVon Hippel-Lindau Family Alliance
The von Hippel-Lindau Family Alliance is dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease.

OrganizationMarch of Dimes
The March of Dimes seeks to prevent birth defects, infant mortality, low birthweight, and lack of prenatal care.

OrganizationAtaxia-Telangiectasia Children's Project
The A-T Children's Project raises funds to accelerate research aimed at finding a cure and improving the lives of children with ataxia-telangiectasia. This website contains information for parents about the disease and how it is treated.

OrganizationSturge-Weber Foundation (SWF)
The mission of the SWSF is to improve the quality of life for individuals with port wine stains, sturge-weber syndrome (SWS), and klippel-trenaunay syndrome (KT).