The Basics on Genes and Genetic Disorders

The Basics on Genes and Genetic Disorders

Resources

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Sickle Cell Information Center
http://www.scinfo.org
The mission of this site is to provide patient and professional education, news, research updates, and sickle cell resources.

National Human Genome Research Institute (NHGRI)
http://www.genome.gov
The leader in the Human Genome Project, the NHGRI aims to improve human health and fighting disease through genomic research.

Genetic Science Learning Center (GSLC)
http://gslc.genetics.utah.edu
GSLC is a joint project of the University of Utah Eccles Institute of Human Genetics and School of Medicine and the Utah Museum of Natural History, which helps people understand how genetics affect their lives and society.

Cystic Fibrosis Foundation
http://www.cff.org
This organization offers information about the illness, public policy, clinical trials and local chapters.

National Tay-Sachs and Allied Diseases Foundation
http://www.ntsad.org/
The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families.

Little People of America
http://www.lpaonline.org
LPA is a nonprofit organization that provides support and information to people of short stature and their families.

National Hemophilia Foundation (NHF)
http://www.hemophilia.org/home.htm
The NHF's Web site contains information on bleeding disorders such as hemophilia.

National Down Syndrome Society (NDSS)
http://www.ndss.org
NDSS strives to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. Call: (800) 221-4602

NOAH - The National Organization of Albinism and Hypopigmentation
http://www.albinism.org
This site provides information about albinism and hypopigmentation.

DOEgenomes.org
http://www.ornl.gov/hgmis
This Web site produced by the U.S. Department of Energy Office of Science focuses on genome programs including the Human Genome Project.

National Marfan Foundation
http://www.marfan.org
The National Marfan Foundation is a resource for individuals and families affected by Marfan syndrome and related disorders.

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