When Your Baby Has a Birth Defect

When Your Baby Has a Birth Defect

Resources

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Genetic Science Learning Center (GSLC)
http://gslc.genetics.utah.edu
GSLC is a joint project of the University of Utah Eccles Institute of Human Genetics and School of Medicine and the Utah Museum of Natural History, which helps people understand how genetics affect their lives and society.

National Human Genome Research Institute (NHGRI)
http://www.genome.gov
The leader in the Human Genome Project, the NHGRI aims to improve human health and fighting disease through genomic research.

American Academy of Pediatrics (AAP)
http://www.aap.org
The AAP is committed to the health and well-being of infants, adolescents, and young adults. The website offers news articles and tips on health for families.

National Dissemination Center for Children with Disabilities (NICHCY)
http://www.nichcy.org
NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals.

National Society of Genetic Counselors
http://www.nsgc.org/
This organization represents the genetic counseling profession through research, advocacy, and education.

National Down Syndrome Society (NDSS)
http://www.ndss.org
NDSS strives to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. Call: (800) 221-4602

March of Dimes
http://www.marchofdimes.com
The March of Dimes seeks to prevent birth defects, infant mortality, low birthweight, and lack of prenatal care.

DOEgenomes.org
http://www.ornl.gov/hgmis
This Web site produced by the U.S. Department of Energy Office of Science focuses on genome programs including the Human Genome Project.

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