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Resources

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Muscular Dystrophy Association (MDA)
http://www.mda.org
The MDA offers news and information about neuromuscular diseases, MDA research, and services for adults and children with neuromuscular diseases and their families. Call: (800) 572-1717

American Academy of Pediatrics (AAP)
http://www.aap.org
The AAP is committed to the health and well-being of infants, adolescents, and young adults. The website offers news articles and tips on health for families.

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CarePages.com is health care's largest social network to provide the emotional support needed for healing and well-being. CarePages enables those involved in a health event to create private websites for sharing health updates, photos and supportive messages

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