A to Z: Hypoplastic Left Heart Syndrome
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National Heart, Lung, and Blood Institute (NHLBI)
The NHLBI provides the public with educational resources relating to the treatment of heart, blood vessel, lung, and blood diseases as well as sleep disorders.
Congenital Heart Information Network
The Congenital Heart Information Network's goal is to provide information and resources to families of children with congenital and acquired heart disease, adults with congenital heart defects, and the professionals who work with them.
Centers for Disease Control and Prevention (CDC)
The mission of the CDC is to promote health and quality of life by preventing and controlling disease, injury, and disability. Call: (800) CDC-INFO
United Network for Organ Sharing
This national group determines who will get donated organs, and when. Organs are assigned based on how sick a person is and how quickly the person needs the organ.