Additional Resources

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National Heart, Lung, and Blood Institute (NHLBI)
http://www.nhlbi.nih.gov
The NHLBI provides the public with educational resources relating to the treatment of heart, blood vessel, lung, and blood diseases as well as sleep disorders. The Institute conducts basic research, clinical investigations and trials, observational studies, and demonstration and education projects. Contact them at: NHLBI Health Information Center P.O. Box 30105 Bethesda, MD 20824-0105 (301) 592-8573

Sickle Cell Disease Association of America
http://www.sicklecelldisease.org
This group provides education, advocacy, and other initiatives to promote awareness of and support for sickle cell disease programs.

National Human Genome Research Institute (NHGRI)
http://www.genome.gov
The leader in the Human Genome Project, the NHGRI aims to improve human health and fighting disease through genomic research.

Genetic Science Learning Center (GSLC)
http://gslc.genetics.utah.edu
GSLC is a joint project of the University of Utah Eccles Institute of Human Genetics and School of Medicine and the Utah Museum of Natural History, which helps people understand how genetics affect their lives and society.

Sickle Cell Information Center
http://www.scinfo.org
The mission of this site is to provide patient and professional education, news, research updates, and sickle cell resources.

American Heart Association
http://www.americanheart.org
This group is dedicated to providing education and information on fighting heart disease and stroke. Contact the American Heart Association at: American Heart Association 7272 Greenville Ave. Dallas, TX 75231 (800) AHA-USA1

Cystic Fibrosis Foundation
http://www.cff.org
This organization offers information about the illness, public policy, clinical trials and local chapters.

National Society of Genetic Counselors
http://www.nsgc.org/
This organization represents the genetic counseling profession through research, advocacy, and education.

National Hemophilia Foundation (NHF)
http://www.hemophilia.org/home.htm
The NHF's Web site contains information on bleeding disorders such as hemophilia.

National Down Syndrome Society (NDSS)
http://www.ndss.org
NDSS strives to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. Call: (800) 221-4602

March of Dimes
http://www.marchofdimes.com
The March of Dimes seeks to prevent birth defects, infant mortality, low birthweight, and lack of prenatal care.

American Academy of Pediatrics (AAP)
http://www.aap.org
The AAP is committed to the health and well-being of infants, adolescents, and young adults. The website offers news articles and tips on health for families.