Additional Resources

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National Institute of Diabetes and Digestive and Kidney Diseases
http://www.niddk.nih.gov
This group conducts and supports research on many serious diseases affecting public health.

Family Voices
http://www.familyvoices.org
This website brings together families who have children with special health needs.

Cystic Fibrosis Foundation
http://www.cff.org
This organization offers information about the illness, public policy, clinical trials and local chapters.

Boomer Esiason Foundation
http://www.esiason.org
This former NFL quarterback has a personal interest in CF - his son has the disease - and has created this foundation to help find a cure.

Shwachman-Diamond America (SDA)
http://www.shwachmandiamondamerica.org
SDA was established to support and encourage research of Shwachman-Diamond Syndrome (SDS)by providing grants to researchers and educating medical professionals. SDA educates physicians and families about SDS and also provides current medical information on SDS.