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Muscular Dystrophy Association (MDA)
The MDA offers news and information about neuromuscular diseases, MDA research, and services for adults and children with neuromuscular diseases and their families. Call: (800) 572-1717
American Academy of Pediatrics (AAP)
The AAP is committed to the health and well-being of infants, adolescents, and young adults. The website offers news articles and tips on health for families.
Parent Project Muscular Dystrophy
ClinicalTrials.gov, a registry of federally and privately supported clinical trials around the world, has information on a trial's purpose, who may participate, locations, and phone numbers for more details.