Additional Resources

Please Note: By clicking a link to any resource listed on this page, you will be leaving the KidsHealth site.

Sickle Cell Disease Association of America
http://www.sicklecelldisease.org
This group provides education, advocacy, and other initiatives to promote awareness of and support for sickle cell disease programs.

National Human Genome Research Institute (NHGRI)
http://www.genome.gov
The leader in the Human Genome Project, the NHGRI aims to improve human health and fighting disease through genomic research.

Genetic Science Learning Center (GSLC)
http://gslc.genetics.utah.edu
GSLC is a joint project of the University of Utah Eccles Institute of Human Genetics and School of Medicine and the Utah Museum of Natural History, which helps people understand how genetics affect their lives and society.

Centers for Disease Control and Prevention (CDC)
http://www.cdc.gov
The mission of the CDC is to promote health and quality of life by preventing and controlling disease, injury, and disability. Call: (800) CDC-INFO

Cystic Fibrosis Foundation
http://www.cff.org
This organization offers information about the illness, public policy, clinical trials and local chapters.

National Society of Genetic Counselors
http://www.nsgc.org/
This organization represents the genetic counseling profession through research, advocacy, and education.

National Down Syndrome Society (NDSS)
http://www.ndss.org
NDSS strives to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. Call: (800) 221-4602

American Academy of Pediatrics (AAP)
http://www.aap.org
The AAP is committed to the health and well-being of infants, adolescents, and young adults. The website offers news articles and tips on health for families.

DOEgenomes.org
http://www.ornl.gov/hgmis
This Web site produced by the U.S. Department of Energy Office of Science focuses on genome programs including the Human Genome Project.