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National Organization for Rare Disorders (NORD)
http://www.rarediseases.org
NORD is a federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities.

The National Hospice and Palliative Care Organization
http://www.nhpco.org/templates/1/homepage.cfm
An organization devoted to improving the lives of patients and families who are coping with serious, or terminal, illness. Through this website, families may access a list of hospice or palliative care providers in their area.

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