Resources

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Sickle Cell Disease Association of America
http://www.sicklecelldisease.org
This group provides education, advocacy, and other initiatives to promote awareness of and support for sickle cell disease programs.

National Human Genome Research Institute (NHGRI)
http://www.genome.gov
The leader in the Human Genome Project, the NHGRI aims to improve human health and fighting disease through genomic research.

National Society of Genetic Counselors
http://www.nsgc.org/
This organization represents the genetic counseling profession through research, advocacy, and education.

National Down Syndrome Society (NDSS)
http://www.ndss.org
NDSS strives to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. Call: (800) 221-4602

March of Dimes
http://www.marchofdimes.com
The March of Dimes seeks to prevent birth defects, infant mortality, low birthweight, and lack of prenatal care.