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  • Neurofibromatosis Type 1 for Parents


    Neurofibromatosis type 1 (NF1) is a genetic condition that causes benign tumors in and under the skin, often with bone, hormone, and other problems. Learn more about how it's diagnosed and treated.

  • Muscular Dystrophy for Parents


    Muscular dystrophy is a disorder that weakens a person's muscles over time. People who have the disease can gradually lose the ability to do everyday tasks.

  • CLOVES Syndrome for Parents


    CLOVES syndrome is a very rare genetic disorder that causes vascular, skin, spinal, and bone or joint abnormalities.

  • A to Z: Spinal Stenosis for Parents


    Spinal stenosis is a narrowing of the spaces in the spine, or backbone, where the spinal cord is located. Pressure placed on the spinal cord causes pain and disruption to some body functions.

  • A to Z: Congenital Anomaly for Parents


    Sometimes babies are born with anomalies - one or more parts of the body that are different from normal in size, shape, or functioning. Learn more here.

  • A to Z: Deformity, Congenital for Parents


    Learn about types of birth defects and conditions that affect the size and shape of body parts.

  • Chest Wall Disorder: Pectus Carinatum for Parents


    Pectus carinatum, sometimes called pigeon chest, is when the chest wall causes the chest to jut out.

  • Fanconi Anemia for Parents


    Fanconi anemia is an inherited condition in which the bone marrow doesn’t work normally. A child with the condition needs lifelong medical care.

  • Duchenne Muscular Dystrophy for Parents


    Duchenne muscular dystrophy is the most common form of muscular dystrophy. It gradually makes the body's muscles weaker.

  • Cerebral Palsy for Teens


    Cerebral palsy is one of the most common developmental disabilities in the United States. It affects a person's ability to move and coordinate body movements.