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Nicklaus Children's Hospital

Nicklaus Children's Hospital
3100 S.W. 62nd Avenue
Miami, Florida 33155
(305) 666-6511 or toll-free 1-800-432-6837
Physician referral: 1-888-MCH-DOCS
Email: info@nicklaushealth.org


Spinal Muscular Atrophy (SMA): Steven's Story (Video)

What's It Like to Live With Spinal Muscular Atrophy (SMA)?

Steven, 14, is like most other teens. He's an athlete who loves Italian food and hanging out with his friends. And even though he's got a condition that makes it hard to get around, he doesn't let that stop him from doing the things he loves to do.

  • Steven's Story

    Steven's Story

    Steven, 14, was diagnosed with spinal muscular atrophy (SMA for short) when he was 3 years old. Here's what life looks like for a guy who lives to surprise people — and who doesn't like the word "normal."

Medically reviewed by: KidsHealth Medical Experts