End-of-Life Care for Children With Terminal Illness
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The National Hospice and Palliative Care Organization
An organization devoted to improving the lives of patients and families who are coping with serious, or terminal, illness. Through this website, families may access a list of hospice or palliative care providers in their area.
National Organization for Rare Disorders (NORD)
NORD is a federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities.