When Your Baby Has a Birth Defect
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Centers for Disease Control and Prevention (CDC)
The CDC (the national public health institute of the United States) promotes health and quality of life by preventing and controlling disease, injury, and disability.
Genetic Science Learning Center (GSLC)
GSLC is a joint project of the University of Utah Eccles Institute of Human Genetics and School of Medicine and the Utah Museum of Natural History, which helps people understand how genetics affect their lives and society.
National Human Genome Research Institute (NHGRI)
The leader in the Human Genome Project, the NHGRI aims to improve human health and fighting disease through genomic research.
March of Dimes
The March of Dimes seeks to prevent birth defects, infant mortality, low birthweight, and lack of prenatal care.
This Web site produced by the U.S. Department of Energy Office of Science focuses on genome programs including the Human Genome Project.
National Society of Genetic Counselors
This organization represents the genetic counseling profession through research, advocacy, and education.
National Dissemination Center for Children with Disabilities (NICHCY)
NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals.
National Down Syndrome Society (NDSS)
NDSS strives to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. Call: (800) 221-4602
National Organization for Rare Disorders (NORD)
NORD is a federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities.