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When Your Baby Has a Birth Defect


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OrganizationCenters for Disease Control and Prevention (CDC)
http://www.cdc.govThis link will open in a new window.
The CDC (the national public health institute of the United States) promotes health and quality of life by preventing and controlling disease, injury, and disability.

Web SiteGenetic Science Learning Center (GSLC)
http://learn.genetics.utah.edu/This link will open in a new window.
GSLC is a joint project of the University of Utah Eccles Institute of Human Genetics and School of Medicine and the Utah Museum of Natural History, which helps people understand how genetics affect their lives and society.

Web SiteNational Human Genome Research Institute (NHGRI)
http://www.genome.govThis link will open in a new window.
The leader in the Human Genome Project, the NHGRI aims to improve human health and fighting disease through genomic research.

OrganizationMarch of Dimes
http://www.marchofdimes.comThis link will open in a new window.
The March of Dimes seeks to prevent birth defects, infant mortality, low birthweight, and lack of prenatal care.

http://www.ornl.gov/hgmisThis link will open in a new window.
This Web site produced by the U.S. Department of Energy Office of Science focuses on genome programs including the Human Genome Project.

OrganizationNational Society of Genetic Counselors
http://www.nsgc.org/This link will open in a new window.
This organization represents the genetic counseling profession through research, advocacy, and education.

OrganizationNational Dissemination Center for Children with Disabilities (NICHCY)
http://www.nichcy.orgThis link will open in a new window.
NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals.

OrganizationNational Down Syndrome Society (NDSS)
http://www.ndss.orgThis link will open in a new window.
NDSS strives to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. Call: (800) 221-4602

OrganizationNational Organization for Rare Disorders (NORD)
http://www.rarediseases.orgThis link will open in a new window.
NORD is a federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities.

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