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Cystic Fibrosis

Cystic Fibrosis

Resources

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OrganizationShwachman-Diamond America (SDA)
http://www.shwachmandiamondamerica.org
SDA supports research of Shwachman-Diamond Syndrome (SDS) with grants to researchers, and educates physicians and families about SDS.

OrganizationCystic Fibrosis Foundation
http://www.cff.org
This organization offers information about the illness, public policy, clinical trials and local chapters.

OrganizationNational Institute of Diabetes and Digestive and Kidney Diseases
http://www.niddk.nih.gov
This group conducts and supports research on many serious diseases affecting public health.

OrganizationBoomer Esiason Foundation
http://www.esiason.org
This former NFL quarterback has a personal interest in CF - his son has the disease - and has created this foundation to help find a cure.

Web SiteFamily Voices
http://www.familyvoices.org
This website brings together families who have children with special health needs.