[Skip to Content]
Barbara Bush Children's Hospital

The Barbara Bush Children's Hospital
At Maine Medical Center

22 Bramhall Street
Portland, Maine 04102-3175
www.bbch.org


Spinal Muscular Atrophy (SMA): Steven's Story (Video)

What's It Like to Live With Spinal Muscular Atrophy (SMA)?

Steven, 14, is like most other teens. He's an athlete who loves Italian food and hanging out with his friends. And even though he's got a condition that makes it hard to get around, he doesn't let that stop him from doing the things he loves to do.

  • Steven's Story

    Steven's Story

    Steven, 14, was diagnosed with spinal muscular atrophy (SMA for short) when he was 3 years old. Here's what life looks like for a guy who lives to surprise people — and who doesn't like the word "normal."

Medically reviewed by: KidsHealth Medical Experts